Wednesday, September 19, 2012

The letter

I opened the letter and scanned the first few lines.
I was overcome by a confusing mix of guilt, sadness, fear, dread and relief.
"I can't read this," I said.
"I will read it if you are having trouble," my husband offered.
"I don't mean I can't read it because I can't read it ... I mean I can't read it because ......" my voice trailed off, tears welling in my eyes.
John gave me that look that husbands give when they have no idea what is going on but can see that they are on a hiding to nothing. We were sitting in the middle of a coffee shop near our house.
He calmly picked up the letter and started to read it to himself. He nodded knowingly.
It was a few days later that I actually sat down and properly took in its contents.
"The donation service feels it is appropriate to write to you to let you know that there is a way for you to express thanks to the donor family. I would ask that you spend a few minutes thinking about the donor and their family who made your transplant possible.
"The decision to donate was made in a time of great sadness for the family in the hope that two people may be able to see clearly again."
And I was one of those people given a better chance at life thanks to the donation of a cornea.
I wondered about the other person. I guessed they had received the same letter. How were they coping with it?
For me the journey has been deeply emotional.
The day one of my specialists checked my eyes and said the time had come when I needed to seriously think about a cornea transplant I shed a tear.
Those who know me well know that I am prone to tears. I cry at school assembly, even if it isn't one of my kids receiving an award. I cry at movies even when they aren't strictly tear jerkers. I cry watching the Royal Children's Hospital Appeal.
So it is fair to say that since I found out I had pretty well come to the end of the road in the correction of my Keratoconus I have shed a few tears.
I think my specialist thought that I was crying because I was scared. Yes, sure, there was and is a bit of that. But I was crying at the realisation that the procedure would not take place unless another person died.
That's heady stuff for a lapsed Catholic guilt-ridden Virgo.
I kept the imminent surgery pretty quiet. I am normally a "problem shared is a problem halved" type of person but not so on this case. I have been doing my own grieving.
A few people I had needed to tell for pure logistical reasons were sympathetic, supportive and freaked out. A few brushed it off, thinking it was laser surgery or cataract surgery and I would be good as gold overnight. A few I confided in reassured me that it would be the wish of the donor and their family to help someone like me.
Others were a bit too glib for my liking. "Well, they're dead, it won't be much good to them."
For me it is a big deal for people to donate their organs. I have heard contradictory things about cornea donations. One of my specialists suggested that husbands had been known to veto the donation of their wife's corneas. "Take anything, but please don't touch her eyes," was how one explained it.
Another medico said in their experience cornea donation is relatively common because it is not invasive to remove the organ, people are more likely to give permission.
I am not sure but specialists, in consulation with the collection service, work on a formula of x amount of donations per month and then give you a rough idea of when your number will come up. It is a bit like taking your number at the deli. But, unlike some other organ procedures, there is no emergency phone call in the middle of the night to tell you to drop everything and get into the hospital pronto. In my case I had been aware of my D-day for some time but was in denial or more likely dread.
In the weeks leading up to it, every time I picked up a newspaper and saw a story about someone dying I quickly averted my eyes. I did not want to even think about where my new cornea was coming from.
So, now down the track, what do I say to the donor family? I tucked the letter in my pile of "must do" paperwork. But the task was never far from my mind. I started thinking about it while I was in the shower and started sobbing. I have sat down at the computer and been unable to find the words..
Due to strict legislation about organ and tissue donations in Australia I can't identify myself. I have to be vague in any letter.
I finally wrote that letter. I won't say what I wrote because that is between the family and me. But I hope it conveyed my great sense of gratitude. I hope they are coping with the death of their loved one. And I hope I am worthy of this greatest gift of love to a fellow human being.

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